Advocacy and Research

Amy LIVE on the Air: January 30!

By Riva Preil

To whet your appetite…enjoy the pre-game show! Amy Stein will be interviewed LIVE on The Pelvic Messenger with Robert Echenberg, MD, and Lisa Petti, an attendee from last year’s Alliance for Pelvic Pain Retreat. The interview will be to discuss the success of last year’s retreat as well as the upcoming retreat (March 8-9 in New York City). The interview will take place next Thursday, January 30th, at 6:00 PM EST. Please feel free to call in and ask questions! To access the live interview next Thursday, please click the link below at that time:–interview

Questions for Alliance Interview

1. What topics will be presented at the retreat?

In the morning, we will present and discuss what pelvic pain is and the many factors contributing to pelvic pain, the possible causes, why it is so commonly misdiagnosed, evaluation and treatment from a physician perspective, mental health and physical therapy perspective. In the afternoon, we will have workshops with the mental health providers on topics such as: emotional aspects of chronic pain, mindfulness-based stress reduction, coping techniques for wellbeing and ways to maintain hope. Physical therapy workshops will include gentle self-massage techniques, stretches, and relaxation techniques specific to the pelvic floor. There will also be a question and answer session with both Dr. Echenberg and Dr. Coady, which is new this year! There will also be yoga each morning, with Dustienne Miller, as well as 1 on 1 evaluations and/or treatments with many wonderful integrative therapists and physicians.

2. What are your goals for the retreat?

The goals for the retreat are to create a safe learning environment where participants feel comfortable in expressing their thoughts and feelings. Furthermore, the goals of this curriculum are for patients suffering from chronic pelvic pain (CPP) to develop proficiency in the following areas:

Participants will develop and practice self-healing techniques.
Participants will create a consolidation of self-care skills acquired during the therapies.
Participants will illustrate to themselves and others that progress can be made in managing their pain.
Participants will assess the cognitive, emotional, social, spiritual, and physical consequences of their chronic pelvic pain and how these influences are affected by the pain.
Participants will develop understanding of how CPP affects their sexuality.
Participants will develop an understanding of how CPP affects their relationships with friends, family, and themselves and will learn how to better navigate these relationships.
Participants will develop an understanding of multiple treatment approaches that they can explore within their own community.
Participants will learn how to reframe their sexuality as it relates to CPP.
Participants will have an opportunity to connect with others who share their experiences and feelings related to CP.

3. Which patients are appropriate candidates to attend the retreat?

The retreat is appropriate for: Chronic pelvic pain, Interstitial Cystitis (IC), Irritable Bowel Syndrome (IBS), Pelvic Floor Dysfunction, Vulvodynia, Vestibulitis,Non-Bacterial Prostatitis, Lichen Sclerosis, Pudendal, Neuralgia, Endometriosis, and other pelvic and genital pain disorders (including hyperarousal disorder).

Get help now from a pelvic floor therapist.

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