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Sex and Sexuality

Tightly Wound: A film chronicaling one women’s experience with vaginismus

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At Beyond Basics Physical Therapy, we treat a lot of conditions that limit or entirely prevent someone from having sex. One of those conditions is Vaginismus. The frustration and physical toll can be tiring for patients with this condition. One of the sentiments echoed time and time again by different patients, is how isolating the whole experience can be. Not many people talk about their sex life, let alone medical conditions affecting their ability to have sex. Shelby Hadden is looking to break the stigma by making her own film chronicling her experience with vaginismus. You can read her story and support her Kickstarter campaign here to fund her movie.

I was 24 and had never had sex. I had been dating Gadi for a few weeks and I couldn’t play defense to his advances any longer. It was time to tell him about my vaginismus.

Vaginismus was always the big black cloud of a secret looming over me.

But he surprised me. When I told him about it, he said, “I like you a lot, and we can figure this out. I still want to see you.†My heart soared. No guy I had dated up to that point had showed me an ounce of empathy, patience, or understanding. One guy walked out of my apartment, promised to call me, and never spoke to me again. Another laughed in my face and said, “That’s hilarious.†Finally, someone liked me as a whole person, not just the functionality of one body part.

The next day, he texted me this: “I’ve been thinking about what you shared with me the other night. I feel like it may be a bit more than I am ready for in a relationship. Sex is too important to me.â€

He couldn’t even bother to consider what else we could do or ask how my progress in physical therapy was going. I couldn’t do it RIGHT THEN so I was “too much†for him – which in reality, in situations like these, it means that I wasn’t enough.

I was angry. I’ve been angry before – at other guys, at my body, at doctors, at Shonda Rhimes shows for making sex look so easy, fast, and fun – but this time I was absolutely furious. He gave me the reaction I had always hoped for, only to take it all back. I was just a vagina to him too. In addition, he never considered how important sex was to me. I had gone to a dozen doctors over the course of seven years. I had been going pelvic floor physical therapy every week for over a year. I had been using dilators every day for three years. No one was working harder to have sex than I was.

I needed to take action. As a filmmaker, the only way I knew how to take control over it was to make a film. So I wrote an essay, which I later turned into a script for a short animated film called, Tightly Wound.

Tightly Wound follows my journey from when I started my period and realized I couldn’t use a tampon. It chronicles the various doctors I saw and treatments I tried, the ways I hid my secret. I delve into my unsuccessful attempts at dating and explore what it means to be a virgin in today’s society.

It’s been a year since Gadi broke up with me. My essay has been published in BUST Magazine and I shared my experience at BedPost Confessions – an Austin, TX based storytelling series on sex, gender, and social change. I’ve assembled an extremely talented team of filmmakers to produce the film.

Animation is the perfect form for this film. It allows me to illustrate my internal thoughts and feelings in a metaphorical way rather than succumbing to the limitations of live-action. However, animation is an extremely time-consuming and labor-intensive process. The fastest my animator, producer, and friend, Sebastian Bisbal, can work is 5 seconds of animation per day!

We are raising $20,000 through Kickstarter. Kickstarter is a crowd-funding platform that allows people to support projects they believe in. Kickstarter is all-or-nothing – so if we don’t raise the $20,000, we don’t get any of it at the end of November.

It is estimated that 6% < In a study done by the World Health Organization, worldwide prevalence of pelvic pain has been estimated as being as high as 24%> of people with vaginas encounter pelvic pain/sexual dysfunction at some point of their lives. However, this is a difficult number to determine since shame and embarrassment keep so many people from seeking medical care.

Please join me in making this film and shining a light on pelvic pain/sexual dysfunction by donating to the Kickstarter. Thank you so much for your support!

Kickstarter link: http://kck.st/2dUTASv

Check out the trailer here: https://vimeo.com/188456092

Sincerely,

Shelby Hadden

Sources:

Latthe P, Latthe M, Say L, et al. WHO systematic review of prevalence of chronic pelvic pain: a neglected reproductive health morbidity. BMB Public Health. 2006

—FAQ

Frequently Asked Questions

Pelvic Floor Disorders and Treatment

What is pelvic floor dysfunction and why does it happen?

Pelvic floor dysfunction is extremely common and occurs when the muscles, tissues, or nerves of the pelvic floor are weakened, tightened, or injured by trauma, chronic strain, or overuse. Pelvic floor disorders can result from traumatic injury such as a fall, from sporting activity, surgery, or childbirth. They can also happen from more chronic issues, such as infection or chronic inflammation such as endometriosis. Pelvic floor disorders can be a consequence of poor alignment or posture, overuse, or improper movement. The pelvic floor muscles surround the urethra, rectum, vagina and prostate; therefore, if there is a dysfunction in these muscles it can result in urinary, bowel, or sexual dysfunction in people of all ages.

Who should I see to get a proper diagnosis?

Many healthcare providers don’t assess – or don’t know how to assess – the pelvic floor muscles and nerves, so it’s important to get a proper diagnosis from a practitioner who specializes in pelvic floor dysfunction and pelvic pain. Too often patients tell us that they’ve been to 10 different doctors and healthcare providers and their symptoms have not improved, or have worsened. Find a specialist right away and get on the path to healing as quickly as possible.

Why do healthcare providers miss (or misdiagnose) pelvic floor dysfunction?

Long story short, the medical practice is divided into areas of the body: Urology. Orthopedics. Gynecology. But the body itself doesn’t have walls; every system interacts with everything else. Sometimes providers are so laser-focused on what they treat that they miss the whole picture. 

As more and more research emphasizes the importance of physical therapy as part of a complete treatment regimen, more and more physicians are learning how to recognize and treat pelvic floor disorder. In the meantime, if you’re not getting relief from your current treatment, make an appointment with a pelvic floor specialist to learn more.

How does pelvic floor dysfunction affect sex?

Pelvic floor muscles have a huge impact on sex. Muscles that are shortened or tight and are unable to elongate will not allow for good blood flow into the genitals. This can result in pain, weaker erections, diminished sensation, inability to orgasm, and even decreased lubrication. Pelvic floor PT can help with these issues by enhancing blood flow and improving muscle function. 

How can pelvic floor dysfunction cause bloating?

Pelvic floor dysfunction, a condition characterized by the inability to correctly relax and coordinate pelvic floor muscles, can significantly contribute to bloating due to its impact on gastrointestinal functions. When these muscles are not functioning properly, it can impact the ease of emptying and make it difficult for your body to pass stool and gas through the intestines. This obstruction leads to an accumulation of waste and gas in the gastrointestinal tract, causing bloating and abdominal discomfort.

Is it true there’s internal massage?

There can be. We do perform internal soft tissue mobilization of the pelvic muscles that are inside your pelvis and are accessible only through the vagina or rectum. We never do internal treatment without your consent and understanding.

What makes someone a pelvic floor PT vs a regular PT?

All pelvic PTs get additional training in pelvic floor internal treatment through continuing education and at our clinic. 

We pride ourselves on the level of training we provide, not just at the beginning but throughout the time our therapists spend at Beyond Basics. We know that learning is a life-long process.  We also provide additional training in physiology of the GI system and urinary system as well as sexual health and function and nutritional training. Most PT programs and schools do not provide the depth and breadth of knowledge that we provide all our PTs at Beyond Basics.

Get help now from a pelvic floor therapist.

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